Let’s not forget the importance of data

I was captivated reading Lawrence Ingrassia’s A Fatal Inheritance, which narrates a deeply personal account of families plagued by early-onset cancers, as well the scientific history behind the discovery of the P53 gene mutation that explains cancer clusters like Li-Fraumeni Syndrome.

Among many reflections, one stood out: the critical role of data in revealing patterns and connectivities that lead to groundbreaking scientific discoveries.

I was in awe of the tenacity of the researchers, and even more moved by the selfless generosity of countless patients and families who contributed samples and information, knowing it likely would not help themselves, but hoping it would bring understanding, prevention and treatments for future generations.

As we marvel at what AI can do in today’s world, let’s stay grounded in why we pursue research: for the patients. Let’s not forget the importance of data, or lose sight of where it comes from.

Years ago, when I was in the hospital, nurses asked if I would consider donating the tissue samples from my surgery. I signed without hesitation – it would have been hypocritical not to, given how passionate I’ve been about building data ecosystems for research.

So I ask you, friends in my professional network: when you’re given the opportunity to contribute samples and information, please say yes.